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Size: 6 x 9
Pages: 276
Illustrations: 4 b&w halftones

Rhetoric & Communication
paperback
ebook
hardcover
Forthcoming
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Health, Medicine & Psychology
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The Patient Empowerment Paradox

Lyme Disease Rhetoric and Contested Health Literacies

Sarah Ann Singer

Paperback
978-1-64336-653-1
Published: Feb 19 2026

$29.99

Hardcover
978-1-64336-531-2
Published: Feb 19 2026

$114.99

Spiral Bound

Published:

Ebook
978-1-64336-657-9
Published: Feb 19 2026

OA Ebook
978-1-64336-657-9
Published: Feb 19 2026

$0.00

The inclusion of this book in the Open Carolina collection is made possible by the generous funding of

How chronic Lyme sheds new light on the rhetorical problem of patient empowerment

Modern medicine asks patients to be informed and empowered partners in their own care. However, when this care system fails to provide answers, many individuals with chronic and contested illnesses use these same skills of research and advocacy to take matters into their own hands. They seek treatment from providers who confirm their self-diagnoses while touting cures of variable safety and efficacy. Sarah Ann Singer terms this dynamic the patient empowerment paradox.

In The Patient Empowerment Paradox, Singer analyzes published narratives, interviews, healthcare provider websites, and a patient data bank, as well as her own experience as a patient, to reveal how individuals become entangled in medical debates, misinformation, and decision fatigue. For Lyme researchers and scholars of other chronic and contested illnesses, she provides a framework to better understand the rhetoric of medical uncertainty and pave the way for improved patient outcomes.




Sarah Ann Singer is associate professor of English at the University of Central Florida. She has published articles in journals, including College English and Rhetoric of Health and Medicine.

"In this innovative study, Sarah Ann Singer introduces a powerful new theoretical framework. Her exploration of health literacies in a patient's life and care is invaluable not only for scholars of rhetoric but also for healthcare professionals."—Lisa Melonçon, Clemson University, coeditor of Rhetoric of Health and Medicine As/Is

"Singer provides a nuanced, essential portrait of chronic illness in America, revealing how patients must navigate not only debilitating symptoms but also a crushing information ecosystem that demands constant—and sometimes dangerous—self-advocacy."—David Scales, Weill Cornell Medicine, coauthor of the National Academies of Science report, Understanding and Addressing Misinformation about Science

"This insightful analysis shows what happens when patients take their health matters into their own hands, exposing the limits of patient empowerment."—Lisa B. Keränen, University of Colorado Denver, author of Scientific Characters

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